Once Upon A Prayer

Monday, January 21, 2013

Safe in my arms...

Last night (Sunday) was one of the roughest nights we have had yet.  Impossible you must think...no, not impossible.  Lily's chest tubes hardly drained all week, and the doctors took this as a "good sign" that perhaps her pleural effusions were clearing up.  But Mommy knows best, and I knew otherwise.  Lily's breathing sounded crunchy, and her breaths were extremely labored.  I held a towel under her chin for hours as she coughed and gagged and cried.  The only thing I could repeat over and over was, "I know baby girl...I am so sorry!"

Lo and behold, Lily's chest X-ray from this morning was HORRIBLE!  Not only were her pleural effusions on both side huge, but both of her lungs are now full of fluid.  The nurse striped and flushed her chest tubes which caused terrible pain and discomfort.  The right chest tube starting dumping some of the fluid, but the left one has not budged all day.  As a matter of fact, some fluid has leaked onto her t-shirt, which means it probably has a kink somewhere under the bandage.  With the help of some pain medication, Lily had some great moments today.  They were followed by tears and silence, but we capitalized on those good moments.

Tomorrow morning we will see what her chest X-ray looks like.  We are also waiting on some lab results that have not been processed yet because it was a holiday weekend.  I will not say anything more about this because what I have to say is NOT NICE.

The best part of my day...
even if it was 2pm and I was still in my pajamas.
Safe in my arms!

13 comments:

  1. Praying for you all each and every day. My girls are writing Lily's name in their prayer journals as I type this. She is covered in prayers!!!

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  2. Love that beautiful Lily face:) And I'm quite sure there's no other set of arms on earth that she feels more comfortable in. Such a blessing to be able to hold that baby! Still praying continually for miracles!

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  3. I have had one of the hardest weeks of my life and one day I hope that we can talk about the details of it but for now you not need my worries..... I just need you to know that no matter what "big" life changing events happen in my own life I never stop thinking and praying for lily, you and your family. I hope you can understand through my own loses, she is still so very important! I continue to ask God to pour out on her and I never stop trusting him even when I don't understand. Love yall

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  4. Our family thinks and prays for your family daily. We continue to lift Lily's situation to the creator and healer. Please take peace in knowing that there are people praying for your little princess all over the globe.

    Love from Emily

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  5. I cannot stop thinking of you and your family and the miracles I have already witnessed by reading this blog. Please know prayers all being lifted up for all of you! So thankful Lily has a momma to hold her. Blessings, Rene'

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  6. Praying daily for sweet Lily and your whole family!

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  7. So wonderful that you get to hold your sweet girl! Lily of course and the whole family is in our prayers!

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  8. We are praying for you and Lily every day! Praying that GOD will continue to place his healing hands upon Lily.

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  9. We continue to pray for healing of your precious Lily. So glad you are getting the opportunity to hold her in your arms. Hugs from NC

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  10. Emily, I'm including Lily and your family in next week's Faces of Children prayer list that goes out to our intercessors around the U.S. and the world. www.facesofchildren.net. You all are in my personal prayers as well. Thank you for sharing your family's journey and the amazing ways God has been at work in your lives.
    Blessings, Chris Cain Laufer, Director, Faces of Children

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  11. Praying for your dear Lily and your family. Here's hoping she is well very, very soon.

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  12. Our church is praying for Lilly. We pastor a church in Nashville, TN. We have a foster baby that is 17 months that we have taken care of since she was 1 month old who has HLHS. I am not sure what Lilly's diagnosis is. We have been through many hospital stays. Eve's next big surgery will be the Fontan. Our lives have changed since we have had Eve. We have been changed so much. We have learned to truely trust God. We have seen Him perform miracles in Eve's life! He is an awesome God!
    Praying for Lilly and your family to minister to others in the hospital. It is such a mission field. God bless!
    Gwen Lemley

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  13. Poor Miss ! I will say a prayer for her and put her name of the prayer roll at church1

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