Once Upon A Prayer

Wednesday, January 16, 2013

Day of Rest

Today has been a day of rest for Lily Grace.  Tonight she still remains in critical condition, heavily sedated and intubated.  Since the discovery of the blood clot in her heart this morning, the cardiologists, surgeons and hematologists have been discussing a course of action.  Today they have decided to use high doses of blood thinners to attempt to dissolve the clot.  This tactic will be re-evaluated in the morning if it has not changed.  Lily's blood pressure is being maintained through dopamine and epinephrine.  Her heart rate is still extremely tachacardic (fast) and that is being helped by Milrinone...used for patients suffering from heart failure.  Lily's ventilator is giving her oxygen and nitric oxide gas.  Lily is on a cooling/heating blanket to keep her temperature at 35 degrees Celsius...brrrrrr! 

Rest our sweet girl, rest.

Evening and morning and at noon will I utter my complaint 
and moan and sigh, and He will hear my voice. 
Psalm 55: 17


  1. Praying for Lily tonight!! And you as well.

  2. Continued prayers for Lily, and for wisdom and guidance for the doctors caring for her. That video is too precious!

  3. Continuing to pray for precious Lily.

  4. Praying hard for this small child.

  5. Praying every day and night for Lily and family. You all are on our hearts and minds daily.

  6. Joshua 1:9 -
    Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go."

  7. I just found your blog a few days ago and I have to say that your story is breathtaking and inspiring! I want you to know that my family and I are praying for healing for both of your beautiful little girls, and for peace and comfort for mom and dad too.