Lo and behold, Lily's chest X-ray from this morning was HORRIBLE! Not only were her pleural effusions on both side huge, but both of her lungs are now full of fluid. The nurse striped and flushed her chest tubes which caused terrible pain and discomfort. The right chest tube starting dumping some of the fluid, but the left one has not budged all day. As a matter of fact, some fluid has leaked onto her t-shirt, which means it probably has a kink somewhere under the bandage. With the help of some pain medication, Lily had some great moments today. They were followed by tears and silence, but we capitalized on those good moments.
Tomorrow morning we will see what her chest X-ray looks like. We are also waiting on some lab results that have not been processed yet because it was a holiday weekend. I will not say anything more about this because what I have to say is NOT NICE.
The best part of my day...
even if it was 2pm and I was still in my pajamas.
Safe in my arms!
Praying for you all each and every day. My girls are writing Lily's name in their prayer journals as I type this. She is covered in prayers!!!
ReplyDeleteLove that beautiful Lily face:) And I'm quite sure there's no other set of arms on earth that she feels more comfortable in. Such a blessing to be able to hold that baby! Still praying continually for miracles!
ReplyDeleteI have had one of the hardest weeks of my life and one day I hope that we can talk about the details of it but for now you not need my worries..... I just need you to know that no matter what "big" life changing events happen in my own life I never stop thinking and praying for lily, you and your family. I hope you can understand through my own loses, she is still so very important! I continue to ask God to pour out on her and I never stop trusting him even when I don't understand. Love yall
ReplyDeleteOur family thinks and prays for your family daily. We continue to lift Lily's situation to the creator and healer. Please take peace in knowing that there are people praying for your little princess all over the globe.
ReplyDeleteLove from Emily
I cannot stop thinking of you and your family and the miracles I have already witnessed by reading this blog. Please know prayers all being lifted up for all of you! So thankful Lily has a momma to hold her. Blessings, Rene'
ReplyDeletePraying daily for sweet Lily and your whole family!
ReplyDeleteSo wonderful that you get to hold your sweet girl! Lily of course and the whole family is in our prayers!
ReplyDeleteWe are praying for you and Lily every day! Praying that GOD will continue to place his healing hands upon Lily.
ReplyDeleteWe continue to pray for healing of your precious Lily. So glad you are getting the opportunity to hold her in your arms. Hugs from NC
ReplyDeleteEmily, I'm including Lily and your family in next week's Faces of Children prayer list that goes out to our intercessors around the U.S. and the world. www.facesofchildren.net. You all are in my personal prayers as well. Thank you for sharing your family's journey and the amazing ways God has been at work in your lives.
ReplyDeleteBlessings, Chris Cain Laufer, Director, Faces of Children
Praying for your dear Lily and your family. Here's hoping she is well very, very soon.
ReplyDeleteOur church is praying for Lilly. We pastor a church in Nashville, TN. We have a foster baby that is 17 months that we have taken care of since she was 1 month old who has HLHS. I am not sure what Lilly's diagnosis is. We have been through many hospital stays. Eve's next big surgery will be the Fontan. Our lives have changed since we have had Eve. We have been changed so much. We have learned to truely trust God. We have seen Him perform miracles in Eve's life! He is an awesome God!
ReplyDeletePraying for Lilly and your family to minister to others in the hospital. It is such a mission field. God bless!
Gwen Lemley
Poor Miss ! I will say a prayer for her and put her name of the prayer roll at church1
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