Day 13 - From Good to Bad

We started out our morning by busting out of Lily's room with the help of the Physical Therapist.  The nurse practitioner took Lily off of oxygen around 9am to see how she would do (again).  Lily was thrilled to have her "shoesies" on her little feet again. 

And off we went...

 We walked down to the playroom, 

and Lily was definitely excited to see toys!

Cooking breakfast for Momma.

Notice Lily's blue lips...Momma was nervous

but trying not to ruin the fun!

 

 By the time we got back to the room, Lily was exhausted and very dusky.  I placed her back in bed just in time for Papa and Soleil to come for  a visit.  Around 1:30pm, I asked for the nurse to come and check on Lily.  Her heart rate was very high, and her oxygen was in the 60's.  They gave her some Tylenol to see if the increased heart rate was from pain.  They also decided to put her back on oxygen.  Papa and Soleil said goodbye around 2pm.  About 15 minutes later the nurse came in to check on her again, and Lily was still not doing any better and actually seemed to be getting worse. She ran Lily's vitals, and  it turned out that Lily had spiked a fever.  The nurse practitioner called for bloodwork and an urinalysis to be done in order to check for infection.  While we waited for the IV Therapy team to come, Lily screamed, cried, and thrashed for about an hour.  They gave her Oxycodone, Motrin, and cool compresses but the little Empress was absolutely miserable no matter what.  My heart broke for my daughter as my mind wandered back to the cheerful little girl just hours earlier in the playroom who was making me breakfast. 

We spent the rest of the day and night doing "calm" activities.

No easy feat when you are "3".

Lily LOVES to listen to her recorded book

that Mimi and Bucca sent her for her birthday!

 

 Even with the Motrin every four hours, 

Lily is still running a low grade fever.

Hoping and praying that Lily is infection free!!!

Evening and morning and at noon 

will I utter my complaint and moan and sigh, 

and He will hear my voice. 

Psalm 55: 17