The Cardiologist looked at all of Lily's vitals, and decided that she needed a full work up in order to get to the bottom of why her oxygen saturations are so low. The low oxygen saturation causes her to be very blue, and not have enough energy to make it through the day. So off we went for an EKG, Echocardiogram, bloodwork, and chest X-ray.
This is Lily in the chest X-ray machine
After hours upon hours of testing, the Cardiologist still does not have a clear explanation as to why Lily's oxygen saturation is so low. She decided to send Lily home on a Holter Heart Monitor to wear for 24 hours in order to see if Lily is having arrithmiyas that could be causing the low saturations.
Lily wearing her Holter Monitor "purse"
Needless to say, we arrived home from our appointment around 8pm after sitting in traffic for 2 hours...YUCK! Lily will wear the heart monitor until 5pm today, and then we will put it in a box and ship it back to the hospital. We should have the results from the data in about 2 weeks.
We will continue to have a nurse come to our home two times a week to evaluate Lily.
Next week, Mackenzie is up for appointments! She will have a CAT scan of her ears on Tuesday, and an appointment with a Geneticist on Wednesday. As always, we covet your prayers for our family!