Once Upon A Prayer

Friday, August 17, 2012

Post-op Cardiologist Appointment

Yesterday was the day that Lily had her post-op check up with her Cardiologist in Washington D.C.  Her appointment was at 1pm, and was supposed to only last about an hour.  Lily was VERY excited to be alone with Mommy, and go to the "hosibal".  Mommy was excited to have Lily evaluated, and get to Washington D.C. and out of Washington D.C. before rush hour traffic begins around 3:30pm.

The Cardiologist  looked at all of Lily's vitals, and decided that she needed a full work up in order to get to the bottom of why her oxygen saturations are so low.  The low oxygen saturation causes her to be very blue, and not have enough energy to make it through the day.  So off we went for an EKG, Echocardiogram, bloodwork, and chest X-ray.

This is Lily in the chest X-ray machine

After hours upon hours of testing, the Cardiologist still does not have a clear explanation as to why Lily's oxygen saturation is so low.  She decided to send Lily home on a Holter Heart Monitor  to wear for 24 hours in order to see if Lily is having arrithmiyas that could be causing the low saturations.  

Lily wearing her Holter Monitor "purse"

Needless to say, we arrived home from our appointment around 8pm after sitting in traffic for 2 hours...YUCK!  Lily will wear the heart monitor until 5pm today, and then we will put it in a box and ship it back to the hospital.  We should have the results from the data in about 2 weeks.

We will continue to have a nurse come to our home two times a week to evaluate Lily. 

Next week, Mackenzie is up for appointments!  She will have a CAT scan of her ears on Tuesday, and an appointment with a Geneticist on Wednesday.   As always, we covet your prayers for our family!


  1. Prayers are covering your family! What a complicated little sweetie you've got (I mean both of them!)...and so worth every minute of it! Praying for answers!

  2. What a PRECIOUS child she is:) I, too, will pray for answers and also for help with her sats!

    God bless and hugs from Florida,
    Lisa Murphy